My name is Cindi and I am a blessed mom of two young boys, David and Joshua. I started blogging over at An Autism Diary which over the years has mainly become a site to spread Autism support and awareness and to share about David’s life with Autism. I first started this sister site as a way to have a place to share other pieces of my life and family beyond the Autism aspect, but haven’t been as active on it as I had hoped to be for various reasons.
In early summer of 2014, I got some news that changed a lot for me. I struggle daily with a condition known as Ehlers-Danlos Syndrome (EDS) that has been leaving it’s mark more profoundly as it’s damage to my body progresses, and upon noticing some of the early signs in my youngest boy (Joshua), I started asking about specialists that could check a child. We finally got in to a genetics specialist about 4 hours away from us on June 23, 2014 and to be safe, we checked both boys in to be seen just in case. As suspected, Joshua came out with a definite diagnosis of EDS and my head started to spin at the realization of what this would mean for him. As I was trying to let it all sink in though and gather my thoughts, the blow that changed everything came. David was diagnosed with it too. I wasn’t really expecting that so it hit kind of hard to realize that both of my boys had this crippling disorder. The good news though was that David was at least spared in the intensity department as he didn’t show near the breakdown as his brother and I have. To be honest, with David already having severe Autism, cognitive delays, seizure history, and a host of other related issues I didn’t know if I could have handled it if I heard he also had severe Ehlers-Danlos Syndrome. It breaks my heart to know Joshua has it as bad as me, but in a way it is easier with him because at least he is able to understand and communicate a little more which makes it easier to help explain to him what is going on and to know when he needs my help or is not feeling well. Joshua has Autism too, but he is on the more mild to moderate end of the spectrum so even though he struggles with delays and communication issues, it’s not as crippling of a roadblock in his life as it is for his brother.
I am re-creating this site so to speak to provide a place for me to share more about our family in general and about our new lives as a family of zebras. I am also wanting to revive this blog as a place to share more of my random thoughts, musings, faith, and other interests as well as it was originally intended.
Thank-you for joining us on this adventure and new chapter in our lives. And to all my faithful followers who have stuck around through my silence, thank-you from the bottom of my heart. Please know that I appreciate each and every one of you. : )