First of all, I would like to apologize for the lack of updates over here. I tend to write most often at my main blog, An Autism Diary, as David is most often my inspiration for writing (whether directly or indirectly). I do however have great news! We made it to Idaho! We had some adventures on the way here and some trials over the last couple of weeks, but things are definitely starting to look up as a whole. 🙂 Starting with better medical care and a doctor who understands Ehlers-Danlos Syndrome! 🙂
I met the new doctor, with kids at my side, on Monday and was so overwhelmed by how much he knew and understood without me having to educate him (such a big difference for me) and at how willing and ready he was to help me. When I asked if he knew of a pediatrician who could help the boys as well, he told me he was a family practitioner and was willing to help my whole family. 🙂 By the time I walked out of that appointment, I was equipped with a doctor who believed me, understood my condition, a script to get my leg brace repaired, and scripts to help take the edge off my pain so I could regain some quality of life. Plus, I have a follow up appointment in just a few weeks, where connections will be made to the specialists I need to manage my symptoms, strengthen my body, and generally help me gain and maintain some stability in this battle that EDS has waged against me.
I really like our new doctor and am beyond grateful for the gift of making it to Idaho so that this partnership could be possible. My days are still full of injuries and struggles common to EDSers, but now I finally am getting the tools needed to fight back, and fight back well. Also, my boys are going to finally have the same and more. They have a fighting chance for a higher quality future than what I was able to give them before. I couldn’t be more grateful for that. 🙂